Please welcome my first guest blogger, very good friend and amazing mum Natalie aka The Spoonie Mummy. As part of Urology Awareness Month Natalie will share her story about her son Riley's Urology problem. Definitely worth a read!
Wow, this is the 4th segment of the #UnderstandingUrostomy series every Friday and they have seemed to be quite a hit!
So this post is all about Purple Bag Syndrome......
Welcome to my second segment of #UnderstandingUrostomies Series.
Today I am talking about what your ideal pH urinary level should be with a Urostomy, how we can achieve this and why it is important!
Welcome to the FIRST of my series #UnderstandingUrostomies which will be every Friday. This series should help educate ALL ostomates about Urostomies and some very unique issues we may have. Please get in touch with me if there is anything specific you would like me to cover. I am having a few problems with my blog atm and my old post about Urostomies and Urinary Diversions is not showing but when this is sorted please check it out if you do not know what a Urostomy is.
I used to love swimming as a child and I was a full on water baby. Taking part in swimming galas (my stroke was breaststroke) and life-saving clubs.
I always felt my true self and at one in the water. Any hard times in my life or stress with exams, I found myself in the pool...swimming. It was the instant stress buster. I felt happy and peaceful in the water and in my true element. Now I have been drawn back to the water and back to the swimming and spas.
Week 3 of #everyhingstomas and #bagroulette. This week I have been sampling the Pelican Platinum Urostomy Pouch for 7 days I used 2 pouches and the Pelican 1.5 litre night bag at night.
Initially, I was given Ileostomy pouches after requesting urostomy pouches but I called Pelican customer services and they were very apologetic and sent me out the Urostomy Convex pouches the next day.
Part of this month’s challenge for July on “The IBD and Ostomy Support Show” we are reviewing different manufacturer pouches. Last week I reviewed CliniMed Welland Aura Convex Urostomy pouch and night bag which I really liked apart from the 2nd day my skin feeling a bit itchy I would definitely recommend this product.
This has been a long time coming and it's not easy to write about. Like my rare illness and subsequent Ostomies have been a journey of acceptance so has my infertility! I want this to be an honest and open account of how it has affected me and at times how dark it got!
However, now the universe has put Laurence and Molly, his beautiful 10-year-old daughter, into my path words cannot begin to describe how much she has enriched my life. I truly love this girl and it is pretty amazing that she entered my life when I was struggling with my infertility.
In my previous blog posts last week I explained ‘How to order Ostomy samples and ordered a few samples from a few Companies.
For the first week of July, part of “The IBD and Ostomy Support Show” #bagroulette I am trying out samples for my Urostomy.
As part of 'The IBD and Ostomy Support Show' last Thursday, we covered some of the reasons ‘Why some people may have ostomies.’ Stephie (aka Colitis To Ostomy) put a poll out across a group she admins and the results were surprising. Personally, I thought it was amazing because sometimes I used to feel a bit alone and left out because to my stomas were not formed because of Cancer or IBD (Even though I now have Diversion Colitis because of the ileostomy). It was good for me to see that there were other ostomates that have had similar complex Neurological Conditions and ended up having an Ostomy. So this got me thinking and I decided to roll the poll in the 'Urostomy Awareness Group' to see ‘Why People have Urinary Diversions?’
I am writing this post as part of our theme for the month of July! On “The IBD and Ostomy Support Show” the girls who all have an Ileostomy are taking part in ‘Bag Roulette’ where they send samples of their bags to each other. Unfortunately, I cannot take part due to my Ileostomy prolapse. After trialling many bags and having many leaks I have found the one for me and I do not think it would be a fair review.
I wrote a Facebook post last week about the ‘affirmations’ I am practicing at the moment to help me get through a tough time. I just would like to say a thank you Stephie at colitistoostomy for persuading me to write a proper post about what affirmations are, the science behind them and how they can help people with chronic illness.
Many of you may be aware of a campaign that was launched last week featuring a poster with 24 AMAZINGLY BRAVE men and women who were ROCKING their Urostomy Bags! First off I want to give a huge thank you to everybody who got involved with the poster. For some people, this was their FIRST ever picture with their bag out!
I am currently in Bournemouth hospital due to another kidney infection and stricture. Currently waiting for a catheter to be put into Squirt (Urostomy)
While I was waiting I decided to go for a wonder downstairs and walked past a few stands in the main entrance of different organisation and charities for carers and advocacy.
I have been quite shocked recently by the nurses in my hospital on the Urology and the Colorectal ward's telling patients that you can NEVER have a bath with a stoma. While I was admitted I met an ostomate who had his stoma for 5 years and has never had a bath because of this advice. This frustrated me and after talking to urostomates in the Facebook group Urostomy Awareness, other people have also experienced this. It makes me sad that there are some ostomates out there who have not had a bath since their surgery.Not everybody has had this advice and I was glad that some Doctors have advised that it is good for the peristomal skin. So here is a post about bathing with an ostomy.
Hi, I’m Laurence and I’m a 43-year-old father of a lovely 10-year-old girl, whom I have full custody of. It has been one of the hardest things I have ever done but also one of the most amazing and rewarding things. There have been lots of learning along the way, then came the most beautiful courageous woman I have ever had come into my life.
This is a detailed account of the 27th July 2015, when I had my bladder removed, an Ileal Conduit (Urostomy) formed and revision on my Ileostomy prolapse. Although I did acquire a few complications I still believe that it was the BEST DECISION I have ever made!
**Disclaimer: - Not everybody will have these complications after surgery. I do not want this post to scare anybody but I felt I needed to write a detailed account of what I experienced, how I overcome it and why I have NEVER regretted making this decision **