Good morning and welcome back to #UroStories! I am sorry I have missed the last 2 Mondays due to my busy schedule but I am back to normality now!
For today's #UroStories we have the amazing and lovely Susan Corley who is 65 years young! Susan helps support many people in the support groups sharing her story and experience. So, take it away, Susan...
- Can you tell me a little about how you got your urostomy?
I got both stomas on 24th January 2017 due to extensive radiation damage after my cancer treatment in 2009. Before I for the bags was virtually housebound from having 2 fistulas. One of my stomach leaking the poo and one at the top of my vagina making me virtually doubly incontinent. So the stomas did actually give me my life back!
- What do you feel is the toughest thing to deal with when living with a urostomy and how do you overcome this?
Leaks and trying to get the correct bags.
- What piece of advice, hints or tips would you give to anybody who is about to have urostomy surgery and start this journey?
I use adhesive tape that are banana shaped but I really like the medical adhesive glue which helps with the sticking. I use Adapt code 7730. I found this out from one of the stoma Facebook groups.
- Are there any support groups, associations or online groups that have helped you live and accept your urostomy?
Yes, this 'Double Bagger Support Group' and the ' Pelvic Radiation Disease Association (PRDA) group.
- Do you feel there is a different level of awareness with the Healthcare Professionals regarding urostomies compared to the other stoma types?
No, not really.
- How do you feel we can raise awareness for urostomies within the general public?
Put notices about stomas and literature in the GP surgeries.
- When you are having a down day what one thing do you do to keep positive that you find helps?
Speaking to family members and grandchildren.
Thank you, Susan, for sharing your story I am glad the stomas have given your life back!