Today for #UroStories we have the inspiring Randal joining us who is 63 years young and lives in Panama City Beach, Florida.
- Can you tell me a little about how you got your urostomy?
I was born with a birth defect: bladder exstrophy, epispadias with micropenis and have a urostomy.
- What do you feel is the toughest thing to deal with when living with a urostomy and how do you overcome this?
The toughest thing was when I was young and single. When dating I tried to be very upfront and open about it and staying positive.
- What piece of advice, hints or tips would you give to anybody who is about to have urostomy surgery and start this journey?
Take your time during recovery and learn your body, with all the new products that are out there don’t be afraid to try something different. For me, convatec works great #125261 and #401646. I can go 6 to 7 days without changing my pouch but of course, if you do a lot of swimming you’ll have to adjust that.
- Are there any support groups, associations or online groups that have helped you live and accept your urostomy?
- Do you feel there is a different level of awareness with the Healthcare Professionals regarding urostomies compared to the other stoma types?
- How do you feel we can raise awareness for urostomies within the general public?
By being more open!
- When you are having a down day what one thing do you do to keep positive that you find helps?
Just getting out and doing something different get out of your routine. Maybe go to the movies, flea market or in my case go to the beach and just sit and watch the waves coming in and out.
Thank you, Randal, for your honesty I'm sure this story will help others!
Please join us next week when we have the amazing and my good friend Sarah sharing her story.