My Blog

Flying with an Ostomy

Flying with an Ostomy

This year my theme for 2018 was ‘Stepping out of my Comfort Zone’ and I have to say I have started this off in style!

Many of you may have seen over my social media platforms that on the 22nd January Steve and I flew out to Gran Canaria for 5 days doing a lifestyle video shoot with Coloplast (sorry to be super secretive but all will be revealed soon).

I am a big believer that the universe works in magnificent ways and things happen for a reason; let alone that people enter your life for a reason. I very much feel this way with Steve and that our stoma bags found us love, but also I needed this little push to step out of my comfort zone and finally go abroad again. 

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What it is Like Living With a Rare Disease

What it is Like Living With a Rare Disease

I originally wrote this for my website last year. However in aid of Rare Disease Day on the 28th February this year I have decided to post this on my blog. Since my stomas were not due to IBD or cancer; I often felt on the outskirts, alone and unwanted. That all changed when I found the online stoma community – a community that was warm and welcoming regardless of how I came to have Bob and Squirt.

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My First Full Blockage After 6 Years With My Ileostomy

My First Full Blockage After 6 Years With My Ileostomy

Throughout my life I have been told that I am a bit airy-fairy very much skipping through life then...oh look it’s a unicorn.

I don’t always pay attention to my body which with 2 stomas and other complications can be problematic sometimes. On Tuesday 9th January I had no choice but to listen...my ileostomy had stopped working and the pain was out of this world.

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'It Takes Guts' by Evelyne Brink - #selfhelpbookreview

 'It Takes Guts' by Evelyne Brink -  #selfhelpbookreview

For the last few months I have slowly been reading an awesome and inspiring book... 'It Takes Guts" by Evelyne Brink – a story of love, hope and a missing bowel. Before I start I would like to say thank you to my landlord's wife Alexandra for sending me this book and connecting me on this path with Evelyne and Tuffel :)

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The Day I Truly Felt Sexy, Confident and Beautiful...

The Day I Truly Felt Sexy, Confident and Beautiful...

It never ceases to amaze me how the universe continues to work in mysterious ways. Never in a million years would I have ever taken part in a lingerie photo shoot before my ostomy surgeries. I just did not have the confidence in myself or my body to bare all even before I got ill.

I remember in school a girl in my year won a modelling competition and began to have a career in modelling, As a very geeky, lanky, braces and glasses kind of gal I secretly dreamed in another life (and another body) that I would have loved to have at least one opportunity to take part in a photo shoot and experience being a model for a day. However, I resigned early on that this would never be my path and I quickly forgot about that dream.

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What a Year...

What a Year...

It is New Year's Eve and I thought I would reflect on 2017 and what it has brought me...

It is hard to put into words how much happier I have been compared to last year. 2016 was extremely difficult both mentally and physically and involved 7 months of the year as an inpatient in Bournemouth Hospital. Last year I roughly had 6 refashion surgeries (8 in a year and a half) for my prolapsed ileostomy that resulted in complications every time. I had sepsis numerous times as well with one time involving a cardiac arrest which added to my time in the hospital.

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Top 10 blog Posts 2017

Top 10 blog Posts 2017

Hi, I hope everybody had a lovely Christmas!

I cannot believe that this time last year all this was a pipe dream and my blog wasn't even launched yet! So much has happened this year and I have met such awesome, inspiring people on my journey that I am proud to call my friends. A lot of these posts were inspired by you guys and by my own experiences so thank you for contributing :) I have always said If one person can find some identification and hope in my posts then I have done my job.

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Merry Christmas To My Followers

Merry Christmas To My Followers

Hi everybody, I thought I would post a quick 'Merry Christmas' for everybody today before the mad rush over the weekend!

This time of year is the perfect time to reflect and show some appreciation. Christmas is a time of giving, I want to give my love to everyone and say I am truly grateful for all of my readers, family, and friends that have and continued to support me in my journey. Honestly, I could never have done this without you all.

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NHS Cuts Finally Affecting Ostomates! Know Your Rights!

NHS Cuts Finally Affecting Ostomates! Know Your Rights!

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The NHS was created on the 5th July 1948 out of the ideal that good healthcare should be available to all, regardless of wealth. In many ways, it has been a victim of its own success. Improvements in treating disease and illnesses have helped to create an ageing population which means more people than ever need its services.

This, therefore, consequently has put the NHS in financial crisis and is under pressure to reduce its spending deficit by £30 billion in 2020 (NHS England 2014)

One of the areas that have been targeted to try and cut back spending are prescriptions.

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The Backbone of the NHS

The Backbone of the NHS

Many of you reading this post may have spent a fair amount of time in hospital. It's pretty hard not too when you have a stoma and everything that can come with that!

Since my urostomy surgery in 2015 when I officially became a ‘double bagger’ I have spent a lot of time in the hospital due to complications with my ileostomy prolapse, numerous refashion surgeries, kidney infections and recurrent unknown sepsis. Last year (2016) I clocked up a total of 8 months as an inpatient in Bournemouth Hospital mainly on ward 15 and 16 the colorectal and urology surgical wards. They were fantastic and felt like my second home. This year (2017) I have only been admitted 6 times which is a miracle in itself compared to last year. 

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Urostomy and Night Drainage Systems

Urostomy and Night Drainage Systems

Welcome to my 7th episode of the #UnderstandingUrostomies series all about urostomy and using a Night drainage system.

I have noticed that not everybody with a urostomy will use a night drainage system at night. In this post, I will explain a bit more about the different types of night drainage systems available and cover some hints and tips.

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Urostomy Association Weekend Event and Why they Need Younger Urostomates to Get Involved!!!

Urostomy Association Weekend Event and Why they Need Younger Urostomates to Get Involved!!!

So for the last 5 weeks every Friday I have been doing the #UnderstandingUrostomies series and I have really enjoyed it. It is lovely having the positive feedback and seeing how many people the series is helping.

If you have seen from my Facebook Blog Page I have been in hospital this week due to a stubborn kidney infection and I haven’t had chance to put anything together in detail so I have decided for today’s post to write about my fantastic weekend at the Urostomy Association (UA) event 3 weeks ago on the 9th and 10th September in Staverton Park Hotel Northampton.

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