In my experience this is ONE of the most challenging and painful questions, that can ever be asked when I meet new people.
Recently I have joined in on the #ostoMYlove June challenge of June’s Self-love month. Already we are now on Day 5 and I am getting an enormous amount of benefit out of this challenge. The challenge has brought home and has got me thinking about the act of gratitude and how grateful I am for so many people and the circumstances in my life. There is an amazing quote by Melody Beattie that says:
"Gratitude turns what we have into enough, and more. It turns denial into acceptance, chaos into order, confusion into clarity...it makes sense of our past, brings peace for today, and creates a vision for tomorrow." Melody Beattie
I feel I need to write a post about how important “CONNECTORS” are for night drainage system.
So briefly what is a connector? Well as mentioned in previous posts, urostmates can have an option to connect up to a night drainage system at night time. This allows for a straight through sleep and to ensure that there is no back-flow to the kidneys. Not every urostomate uses a night bag but personally, I do and they help me not to worry about getting up in the night to empty Squirt. Generally, different manufacturers of the urostomy bag and night bag can be connected by the universal connector. Some night bags can attach without a connector but they may fall off when you move around. Connectors are amazing little things!!
It has been another exhausting day of surviving! My bed is calling...I've had an Epsom salt bath, comfy, pyjamas are on and I'm fantasising about spreading out on my belly all snuggled up in my bed...
That is until I remember about my 2 boys... Bob (my Ileostomy) and Squirt (my Urostomy) and soon that bubble is swiftly burst. It has been 7 years now since I have slept flat out on my tummy and am able to enjoy a straight nights sleep. I have, to be honest, that out of everything I have had to adjust with since my organs failing in 2008 I think after all these years I still yearn for a straight through deep, care-free sleep.
I felt I needed to write this post and clear up some confusion over terminology. I’ve now had Squirt for a year and a half and I’ve only recently become fully aware of the difference between a Urostomy and Ileal conduit.
So after much research and talking to the stoma nurses and Doctor I now have the answer!
We all used to have good veins at some point in our lives, didn’t we?
When a IV cannula would go in that first time and last the whole 3 days with no problems...bliss!!! Unfortunately though with chronic illness and regular admissions over time our veins are over used, damaged and start struggling.
Over the last few years, something magnificent has happened!
There has been a lot of coverage in the media lately about ‘Ostomy’s.’ Ostomates are people sharing their stories and fabulous pictures and proudly flashing their stoma bags. This warms my heart so much to know that the stigma surrounding stoma bags and Ostomy surgery is finally being addressed and changing the public’s perspective about stomas for the better; spreading a message of hope and acceptance to be proud of your stoma bags and that you can still live an amazing, happy life with one!
I usually get the same reaction when I tell people about ‘Bob’ (my ileostomy) and ‘Squirt’ (my urostomy). That look of blankness then laughter. However, there is a method to the madness for naming them.
First thing is first...why should we name our stomas?
Well I encourage every new ostomate that I meet to name their stoma’s. We name pets...cars...nicknames for partners. So why not something that is part of us?
Welcome everybody to rocking2stomas and we have lift off....!!
I cannot explain how much this means to me to share my story and finally achieve my dream after years and years of talking about it.
Over the last 9 years, I feel I have a degree, masters and PhD in dealing with my illness and appliances that have kept me alive! If just one person identifies….then I have done my job! I have found that only another person who lives with a stoma can fully understand the trials and tribulations we face on a daily basis.