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What it is Like Living With a Rare Disease

What it is Like Living With a Rare Disease

I originally wrote this for my website last year. However in aid of Rare Disease Day on the 28th February this year I have decided to post this on my blog. Since my stomas were not due to IBD or cancer; I often felt on the outskirts, alone and unwanted. That all changed when I found the online stoma community – a community that was warm and welcoming regardless of how I came to have Bob and Squirt.

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