I have been wondering how to introduce this amazing gentleman...Today we have Peadar who is 41, from Northern Ireland sharing his story about how he acquired his colostomy and urostomy which was not due to an illness. I think I will let Peadar explain:
- Can you tell me a little about how you got your urostomy?
I was blown up on my way to work in 2010. I had a lot of surgery the first being an emergency colostomy as the bomb had gone off under my car and (pardon my language) I had my arse blown off. I had my right leg completely amputated and have severe nerve damage to my left leg which means I use a wheelchair. I then had to have my bladder removed as a piece of shrapnel in my body was piercing it and causing it to leak inside me (not a good thing) and I had surgery to form a urostomy.
- What do you feel is the toughest thing to deal with when living with a urostomy and how do you overcome this?
The toughest thing is knowing that this is it forever. I often wonder if someone will come up with a more permanent fixture that would mean I didn’t have to change my bag every other day.
- What piece of advice, hints or tips would you give to anybody who is about to have urostomy surgery and start this journey?
Take one day at a time. Speak to people who have had urostomies for a long time and ask their advice. Then disregard that and do your own thing. Well that’s what I did
- Are there any support groups, associations or online groups that have helped you live and accept your urostomy?
Nope. I don’t believe in groups. That’s not being arrogant or cocky I guess I just prefer to learn the hard way!
- Do you feel there is a different level of awareness with the Healthcare Professionals regarding urostomies compared to the other stoma types?
Yes. In my experience, I’d say that the stoma nurses were happier with urostomies but not sure why.
- How do you feel we can raise awareness for urostomies within the general public?
I’m pretty certain I’ve NEVER seen any tv adverts highlighting stomas of any kind.
- When you are having a down day what one thing do you do to keep positive that you find helps?
I don’t have down days. My motto has been “Get over it, and get on with it"
Wow, thank you, Peadar for sharing your story and for being so honest and shining the light on other reasons that may require stomas.
Join us next Monday for the lovely Valerie Behnke.