Welcome everybody to rocking2stomas and we have lift off....!!
I cannot explain how much this means to me to share my story and finally achieve my dream after years and years of talking about it.
Over the last 9 years, I feel I have a degree, masters and PhD in dealing with my illness and appliances that have kept me alive! If just one person identifies….then I have done my job! I have found that only another person who lives with a stoma can fully understand the trials and tribulations we face on a daily basis.
I have a very rare illness under the umbrella of Autonomic Neuropathy but it is similar to Autonomic Failure and Multiple System Atrophy (MSA). My bladder failed first then my bowel failed.
So finally this leads me to now introduce you too….. BOB the ‘knob’ (ileostomy) and SQUIRT (Urostomy) There are stories behind their names which I will talk about in future blogs. So Bob is 6 years old and Squirt I had last year. Unfortunately, I am having some issues with Bob but I will blog all about that later.
It warms my heart so much to see how many brave ostomates have been blogging and sharing their stories. Smashing the ‘poo taboo’ by stunning pictures and engaging with the national media ( although I have noticed a lack of media coverage about urostomy’s ‘ileal conduits,’ which are formed because of urinary system problems.) It is this that I would mainly like to bring attention in my blog. I will be honest and open about the obstacles in my journey that I am still facing.
Telling my story is part of accepting the cards you are dealt with. I think getting out there and living life to the fullest is the best medicine to combat depression and acceptance. Our lives don’t stop……...we just have to dig that little bit deeper.
It would be awesome to hear your stories and feel free to leave any comments or questions you have :)
With love, Rachel